Discrimination and exclusion make disability caregivers isolated in Korea

(From left) Hwang Sun-hee, Lee Jung-wook, Lee Hyung-sook, and Lim Suk-jung, parents of children with disabilities, pose for a photo during an interview with the Kyunghyang Shinmun at the Korean Association of Parents with Children with Severe and Multiple Brain Lesions in Seoul on April 17. Reporter Jung Hyo-jin

“I went to the hospital because I hated my child, because I had thoughts of wanting to kill her.”

Hwang Sun-hee, 51, mother of a 15-year-old daughter with cerebral palsy and cognitive impairments, spoke these words to a reporter at the Korean Association of Parents with Children with Severe and Multiple Brain Lesions in Seoul on April 17. Her daughter has no strength in her body. She cannot move on her own, nor can she eat by herself. Lately, she has started screaming without apparent reason and is often sent home early from her special education school. Soothing her daughter’s endless cries takes up most of Hwang’s day. One day, she recalled being overcome with the thought, “I feel utterly and painfully alone.”

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